Please visit the following links for more information.
Muscular Dystrophy Association
Augie’s Quest, MDA’s ALS research initiative, is an aggressive, cure driven effort focused on finding treatments and cures for ALS.
SPINAL CORD CENTRAL is the web-based resource for people living spinal cord injury, disease or dysfunction, as well as their families, friends and others who have a strong interest or involvement with them. SPINAL CORD CENTRAL is operated jointly by National Spinal Cord Injury Association (NSCIA) and United Spinal Association and staffed by people who have direct, personal experience with SCI/D.
National Transplant Assistance Fund & Catastrophic Injury Program (NTAF). NTAF helps spinal cord injured families organize, launch and sustain local fundraising campaigns to pay for critical but uninsured expenses, as well as financial assistance and other patient support services. You can find out more about NTAF at their website www.transplantfund.org/Catastrophic/ or contact their office at (800) 642-8399. [Click to view Brochure]
ARDS Foundation is a National Not for Profit Organization of volunteers who have been personally affected by ARDS (acute respiratory distress syndrome)
Up-to-date information for federally and privately supported clinical trials
Share information about your ALS progress, learn more about managing your symptoms, and meet other patients like you at PatientsLikeMe; patients helping patients live better every day.
International Ventilator Users Network (IVUN). IVUN's mission is to enhance the lives and independence of home ventilator users and polio survivors through education, advocacy, research, and networking.